cripchick’s weblog

The words carnival and disability together brings many images to mind. Images of freakshows, disability being manipulated, and all kinds of hard times for disabled people are thought of. Here we are though, in 2008, reclaiming and recycling these words together to mean something new. This disability blog carnival, the 37th one of its kind, focuses on the celebration of disability culture, struggle, people, history and identity. Put your party hats on— we’re ready to get started!

“I think it was perhaps the most important thing that happened to me. It formed me, guided me, instructed me, helped me, humiliated me, all those things at once. I’ve never gotten over it, and I am aware of the force and power of it.”
—Dorethea Lange on disability

ThinkFreestyle tells us why disability culture is important to her as a disabled Latina while honoring a friend who traveled alongside her in her journey to community. Solitaire Miles shares with us both a beautiful self-portrait and her difficult experience as a disabled person in the entertainment industry. Wheelchair Dancer writes beautifully about how identity is part practice, part culture while Big Noise taps into collective power through pride. Astrid dissects disability culture and asks whether people can rightfully have a disability identity when being excluded from the disability community.
Bladyblog bravely ponders his disability identity and talks about living on the margins of queer and disability identity groups. Fibrofog does a wonderful job also on this topic and talks about how we can not have a single-issue system of justice and expect change.

Baraka describes her disability as a second husband, someone who takes energy from her, while Wheelie Catholic tells us what she doesn’t miss about her pre-quad body. Paula and Tokah both talk about how disability identity sometimes clashes with the other parts of them (and both come up with really cool terms—Paula “cripeleptic” and Tokah “the chippy martyr”). Kay at The Gimp Parade writes about the complicated all-encompassing [inclusive] nature of the disability community. Ettina talks about disability identity as the differences between you and nondisabled people, not labels. Ettina also covers intellectual and developmental disability stereotypes and how her life fits into them. Estee, at the Joy of Autism blog, also talks about difference and how it is not a deficiency [something lacking]. Shiloh also writes about disability being a part of her and even includes an acrostic poem!

Cheryl tells us what life is like when society tells you are lacking in culture or community and makes her own definitions of disability (hint: creativity! Being resourceful!). Terri tells us what she wants— pride, respect, group accountability for ableism, and acceptance. (Check out her list for more.) Mik Danger, one of my favorite bloggers, tells us why people should ally with the disability community and how movements feed each other. Dark Angel radically defies stereotypes with her beautiful queer, blind, pagan, goth self. Matt speculates why people with disabilities are often excluded from houses of worship. Shiva and Trinity and both talk about the politics of passing [hiding your identity] in a very personal way. Trin says “I wasn’t passing. I was telling myself I passed because I couldn’t stomach the idea that maybe I didn’t, that maybe my disability was something that really did affect how people saw me and thought of me and interacted with me.” Shiva says: ”The problem with “passing” and “stealth”, when it comes to liberation movements, is that it’s essentially an individualistic way of seeking one’s own safety, freedom or place in society by moving out of an oppressed or marginalized group, which inevitably compromises one’s ability to fight for the rights of that whole group”.

Pitt Rehab tells us that, with his spinal cord injury, some days he does not feel disabled while other days his life screams disability. Lauredhel tells us how disability impacts day-to-day routines, like going to the doctor. After some seizures and TIAs, Elizabeth McClung writes in with an emotionally raw post and a letter to herself reminding her who she is. Annaham shares with us a self-portrait where she has needles poking every part of her body but still has her fist raised. David shares his painful experience of hearing a disability slur in a safe space. Perennial Sam shares her first blog post ever with us, one that describes the nature of her mental health disability. Yanub, author of Yet Another Never Updated blog (lol), also writes about the nature of her disability and her journey with it. Amandaw tells us of the way she reluctantly [slowly, unsurely] uses the word “Disabled” and her reasons for it. gives us a Hymes asks us a series of questions around how she is treated as a person with a psychiatric disability.

Elizabeth explains why it isn’t autism that she wants cured but rather neurotypicality [the idea that everyone has to think, behave, and communicate in the same way]. Pocochina writes about her struggle with accepting disability and figuring out if she is a part of the community. Zan at Butterfly Cauldron writes about the need for grieving over the changes in one’s body and life because of disability. Verlidaine talks about the “why you” stare when she calls out ableism. Athena and Ivan talk about the ups and downs of disability or autistic pride and the need to sometimes be guarded about disclosing [letting people know] their disability.

Three new websites were shared with us during this carnival: Endeavor Freedom, a networking site for disability activists and everyday people, Feminist Mental Health UK, a group blog focused on mental health issues, and Hows Your News, a fun media site about a group of disabled people making their mark on pop culture!

Julia also shared a fierce poem inspired by Frida Kahlo. Though I was not able to access it because I don’t have an Endeavor Freedom password (yet!), it is Comment #33 on this thread.

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Whew! Quite a carnival! If you haven’t had time to post yet, feel free to keep sending your posts this way and add to the dialogue!

A special thank-you goes to Penny who, from my 5 second internet research, has been working on the carnival since September 2006. Many props and thanks also go to the 40 bloggers who put a lot of thought into their posts and submitted them and/or were found out (grin) by Penny at the Disability Studies Temple Univ. blog.

The next blog carnival will be at Ryn Tales on the 22nd so be sure to visit over there and find out more.

Again, please feel free to keep submitting!

Please check out Blogging Against Disablism Day!!
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This weekend a group of youth organizers here held a meeting for a conference we are hosting this summer. As is the standard, we hired two sign language interpreters to work from 11-4 and having worked out fees beforehand, expected no problems…but we were in for a surprise.

After 15 minutes into the meeting, one interpreter (terp) asked my friend if she wanted her to leave. My friend, who has been doing a lot of work to bring the Deaf community and disability community together, was confused. Afterall, why would she want the terp to leave when we were just getting started? The terp continued to sign but when breaktime came along, the terp told my friend that because my friend was sharing notes with her boyfriend, the terp was embarrassed, didn’t feel needed, and wanted to leave. Later, the terp would disappear randomly at times, again saying she didn’t feel needed. Through out the meeting, she refused to sign for my friend claiming that my friend could lip read and didn’t need her.

There were many points about this story that made my want to get in my van, go to Raleigh (where the meeting was), and raise some hell. It is a part of interpreting ethics that when you are terping for someone, you are there for THEM. You are not supposed to be the center of attention; in fact it should be the exact opposite. When you do your job wrong, not only is it unprofessional but the person is not able to fully participate.

There were two particular parts about this incident that really hit me to the core—-

This whole situation was 100% about power and ableism (called disablism in the UK). My friend was not supposed to be independent. The terp wanted my friend to beg her to save her and be appreciative for her “help”. When my friend refused to take this position by living her life as she normally would, the terp refused service. By refusing service, she was acting out her power over my friend in a way that left my friend not only feeling very angry but vulnerable (although these may be my feelings projected on to her because this is how I felt when she told me). Kay at the Gimp Parade recently wrote about being in a rehab place where the nurse refused to help her for the same reasons (said Kay could damn well help herself). Perhaps ableism sometimes sounds vague or unclear (often because people like to look at things like racism and ableism as discrimination or dislike instead of power) but this is what ableism is. It is not a person being just unprofessional, it is a person using what they have against another. (more…)

i just came across the coolest blog ever. fibrofog is a “20-something queer college student living with chronic pain and a proud disability blogger and activist”. (taken from the profile box).

here is an excerpt of a poem fibrofog wrote. go check this blogger out!!

“You’re too young to use a cane” he says
unfamiliar, uninvited
looking me up and down
as if assessing the damage
And I’m tired
of inaccessible buildings
nonworking elevators
and walking to
the furthest side of the building
to find the ramp.
But mostly I am tired
of you.
Of your adolescent curiosity
as you try to place me into categories
that don’t fit
Of not using the tools I need
because I can’t deal with
one more rude question
one more rude question
one more fucking rude question
posed by
you, southern sticky sweet
nice girl
concerned girl
cultured girl
charity-lovin’ débutante
but hey, your father’s brother’s mother’s
second cousin twice removed has a neighbor
who has one of those “cripple” kids
so you must really get it

Although many people do not know that the disability community holds the record for the longest occupation of a federal building, today marks the 31st anniversary of the 504 sit-ins.

I love celebrating 504 because it is a reminder of what can be done when people with all sorts of disabilities come together. Interdependence is the truest form of freedom and we must always make time to celebrate the times we come together and are victorious.

Happy 504!!!

(photo from DREDF. Many people with wheelchairs are present and a sign language interpreter is on the right. These activists are sitting outside of the HEW building)

An excerpt from the victory speech given by Ed Roberts:

We have to begin to think very clearly, that what we need to do is help raise the consciousness of our fellow Americans with disabilities, to help them come out from behind, from the back wards, from the institutions, from the places, the garbage heaps, of our society. We have to stop the warehousing, the segregation, of our brothers and sisters. We have a long way to go. But we have one giant step ahead.

Together we have achieved something that relatively few people achieve in their lives. We have learned more than anything else, about each other, about how much we love each other, and that commitment, that dedication to each other, will carry through the rest of our lives.

We have begun to ensure a future for ourselves, and a future for the millions of young people with disabilities, who I think will find a new world as they begin to grow up. Who may not have to suffer the kinds of discrimination that we have suffered in our own lives. But that if they do suffer it, they’ll be strong and they’ll fight back.

And that’s the greatest example, that we, who are considered the weakest, the most helpless people in our society, are the strongest, and will not tolerate segregation, will not tolerate a society which sees us as less than whole people. But that we will together, with our friends, will reshape the image that this society has of us.

We are no longer asking for charity. We are demanding our rights!

To find out more about the 504 sit-ins, check out NPR’s article. They also have many videos and pictures.